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Rare Disease UK launches patient experiences report
Results of the 2015 survey looking at patient experiences with rare conditions.
Marie McGee - Transition Explained
Transition - A Journey for all Young People - as explained by Marie McGee
Disabled Children and Their Legal Rights - Securing care and Support for Vulnerable Children.
Slides from a powerpoint presentation given by Richard Copson, for and on behalf of Pannone LLP.
Comprehensive Care Plan for Rare Disease Patients
Orpha Net Newsletter
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