These are external links to the websites of organisations that offer advice, information and services which may be useful to you....

WellChild
WellChild helps sick children and their families across the UK

Dr. Urano's Blog
A 'blog' site by Fumihiko Urano - detailing current research into WS

Worldwide Society of Wolfram Syndrome Families
A support group for families affected by WS (US)

Genetic Disorders UK
Supporting families affected by genetic disorders

Dr Patrick Yu-Wai-Man
Dr Yu-Wai-Man is researching the visual impairment issues associated
with WS. His page outlining his research this can be found here.

The Snow Foundation
Support & Fundraising group supporting research around the world (US)

Living with Wolfram Syndrome (DIDMOAD)
Another helpful support site (US)

Wolfram Syndrome Registry Site at Washington University
Educational information and research (US)

Contact A Family
The only national charity that exists to support the families of disabled children whatever their condition or disability

Family Fund
The UK's largest provider of grants to low-income families raising disabled and seriously ill children and young people

Reaching Families
This organisation exists to "...empower, care for and inform parents and families of children with special needs in West Sussex."

MD Junction
A further support group with an active forum (US)

Washington University Magazine
In-depth article about Diabetes Mellitus

Science Codex
Treatment target for diabetes, Wolfram syndrome (US - Article)

Genetic Engineering & Biotechnology News
Missing Link Points to New Diabetes Target (US - Article)

Over The Wall
Fully supported activity camps - making children with serious illness smile:-)

Disabled Holiday Info
A useful site for those seeking holidays catering for the needs of the disabled

We Connect Now
Uniting College Students with Disabilities - a global resource

Therapy Directory
Find a professional therapist local to you for treatments such as Acupuncture, Reiki, Massage etc. While WSUK do not officialy endorse this site, we feel that some may find it useful.


This site was set up and is monitored by families affected by this rare genetic disorder.

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