If you or a member of your family have been recently diagnosed and would like to talk to someone who has been on the same journey then please phone and someone from the WSUK team will be there to offer advice and support.

If no one is available then please leave your name, telephone number and a message and someone will get back to you within 24 hours.

Please don't believe everything you read on all the other websites you may look at, there are many inaccuracies on them. The only other website with correct facts is the Worldwide Society of Wolfram Syndrome Families DIDMOAD.

All the information on this site is checked by a medical professional.

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Mailing address:

WSUK Support Group
9 Church Way
West Sussex
BN13 1HD


01903 211358

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